Epilepsy affects everything from driving to sex  

Epilepsy is more than a physical condition. According to a survey by Epilepsy Action, epilepsy and its treatment can also affect relationships, parenting, sexual function, self-esteem, driving and employment.

There are an estimated 225,000 men in the UK living with epilepsy. The survey suggests that for about half of them the condition and its treatment affects their relationships with their partner (48%), other members of their family (54%) and friends (49%). Over a third (37%) feel that their sexual relationships are affected.

Stephen Wiseman from Winchester, who has eplilepsy, talked about how condition affected his everyday life: 'I feel that my epilepsy has affected many areas of my life: my career (being sacked from many jobs early in life because of falling over at work, for example), my relationships with women, my sex life and drive, my social life and my ability to make friends because my confidence and self-esteem have been so low. But I won't let it beat me. I carry on and refuse to hide from the facts about my condition.'

Men with epilepsy are also most likely to die suddenly from their condition. There are almost 1,000 deaths each year as a result of epilepsy. Around 500 of these are from so-called Sudden Unexpected Death in Epilepsy (SUDEP). There are certain common factors that link many SUDEP cases, one of which is being a young adult male.

Epilepsy Action has used the survey results to develop a new information booklet called 'Epilepsy and Men', which is being promoted by Tom Smith, the Scottish international and Northampton Saints rugby star, who has had epilepsy for 15 years.

Tom says: 'This booklet gives an insight into the real thoughts and feelings of men living with epilepsy. If you are a man with epilepsy, this booklet will help you to have a better understanding of your condition and to be aware of those times when it may be a good idea to visit your doctor.'

Amanda Stoneman, Epilepsy Action's information services officer, said: 'It is vital that men have a good knowledge and understanding of epilepsy, so they can make sure they are getting the best treatment. It will also allow them to make their own choices on how to live with epilepsy and reduce the risks of SUDEP, for example by ensuring that they take their medication as prescribed.'

• Copies of 'Epilepsy and Men' are available from Epilepsy Action's Freephone Helpline on 0808 800 5050 or via the website www.epilepsy.org.uk.